Professional Medical & Other Health – Related Organisations & NGOs
TIF has developed a close collaboration with professional societies which focus on research and treatment of diseases or groups of diseases, or focus on public health issues that are relevant to the care of haemoglobinopathies’ patients.
The European Haematological Association (EHA) is the professional body representing haematologists throughout Europe. Indeed the Association promotes the lifelong learning of haematology in Europe and complements the needs of haematology education for the Middle East and other countries. Furthermore, EHA advocates for the further development and implementation of the EHA curriculum for specialist training in haematology across Europe. In addition, EHA enthusiastically encourages individual haematologists to develop and maintain their professional competence through the EHA Continuing Medical Education (CME) system.
HOW TIF WORKS WITH EHA
TIF, in the context of its scientifically-based Educational Programme, collaborates closely with EHA to accredit with EHA CME Units the conferences it organises, thus achieving the well-being and safety of our patients whose doctors are continuously updated with the latest scientific and research developments.
As an acknowledgment of the unparalleled expertise that patients possess on their disease, EHA has launched a Patient Advocacy Group in 2011. TIF has participated in this Group as the biggest organization representing patients with non-malignant haematological disorders. Moreover, the EHA Board has favoured cooperation with patient organizations for some time now and as such, a patient advocacy session is organized at each Annual EHA Congress. TIF participates in these sessions, contributing actively to the discussion which centres on the patient perspective of diagnosis, therapy and quality of life.
More information on EHA can be found at its official website.
The International Paediatric Association (IPA) is the professional body representing paediatricians worldwide. The aim of the Association is to foster relationships among the paediatricians of the world, thus promoting education and sharing of information about child health. Indeed, the IPA’s mission is to encourage paediatricians, together with other stakeholders, to take initiative in promoting physical, mental, and social health for all children, and in realizing the highest standards of health for newborns, children, and adolescents in all countries of the world. The IPA works closely with national health authorities across the world, advocating for quality services to be provided to paediatric populations not only focusing on curative methodologies but preventative mechanisms too.
More information on IPA can be found at its official website.
The European Association for the Study of the Liver (EASL) is a world famous professional society of medical specialists, researchers, clinicians and academics who promote liver research with the ultimate goal to improve the treatment of liver diseases worldwide. EASL’s activities include developing scientific and educational programmes including the highly recognized International Liver Congress which gathers more than 5,000 participants each year, as well as facilitating the drafting and adoption of Clinical Guidelines for various liver diseases in order to ensure patients receive optimal care.
HOW TIF WORKS WITH EASL
TIF participated in the International Liver Congress that took place on 24—28 April 2013 in Amsterdam. The Congress, which is organised annually by the European Association for the Study of Liver (EASL) provides a unique platform for specialists to debate, discuss and analyse the latest developments in the clinical management of liver diseases.
For further information on EASL, please feel free to visit their official website.
The International Society of Blood Transfusion (ISBT), founded in 1935, brings together more than 1300 professionals in the field, from over 101 countries. ISBT is the leading international professional society in the field encompassing transfusion and transplantation science and medicine
ISBT organises regional and international congresses every year aiming to:
- Advocate and promote safe and sufficient transfusion therapy for all patients globally through dialogue between national and international professional societies, intergovernmental and non-governmental organisations;
- Provide opportunities for knowledge and information exchange on relevant scientific, clinical and technical practice and research and development, and;
- Promote, enable and maintain a high level of ethical medical and scientific standards in blood transfusion science and medicine.
For more information on ISBT and its activities, please feel free to visit their official website.
ESTM is a non-profit Association, established in 1992, is managed by an Administration Council and an Executive Committee, and is guided by Scientific and Advisory Committees. ESTM aims to provide specialist teaching of an International and European character in the field of Transfusion Medicine, to specialists already established in the scientific and professional field, physicians, other graduates and paramedical personnel under specialist training.
For more information on ESTM, please feel free to visit their official website.
The European Public Health Alliance (EPHA) is a dynamic member-led organisation, made up of public health NGOs, patient groups, health professionals, and disease groups that work together to improve the health sector and strengthen the voice of public health in Europe. EPHA’s mission is to bring together the public health community to facilitate change and deliver equitable solutions to European public health challenges, whilst simultaneously improving health and reducing health inequalities. In achieving its mission EPHA, monitors the policy-making process within the EU institutions, promotes greater awareness amongst European citizens and NGOs about policy developments and programme initiatives that effect the health of those living in the EU, participates in policy debates and stakeholder dialogues to raise the profile of health in all policy areas, supporting collaboration and partnerships between non-governmental organisations and other organisations active at European, national and local level on health promotion and public health.
HOW TIF WORKS WITH EPHA
TIF engages in a particularly close collaboration with EPHA, supporting its values of universality and equity by participating in various policy consultations, promoting our own vision to ensure that all patients with thalassaemia have equal access to quality healthcare
For more information on EPHA, please feel free to visit their official website.