Our Members

TIF is an umbrella organisation. Its membership comprises national thalassaemia and other disease-specific patients’ associations, health-related organisations and institutions, pharmaceutical companies, health professionals and interested individuals from around the world.

It currently represents a total of 204 members from over 62 countries across the world: 76 General Members, 50 Voting Members, 55 Associate Individuals, 14 Associate Organisations, and 9  Companies.

 

TIF Voting and General Member Associations (listed by country)

Please note this section only contains links to those member associations that have websites.

A M
Albania
Albanian Thalassaemics Association ATA

Algeria
Association “EL AMANI” des DES Anémies Hémolytiques Congénitales

Argentina
Asociacion de Talasemia Argentina
Thalassaemia Foundation of Argentina FUNDATAL

Australia
Thalassaemia Australia Inc.
Thalassaemia Society of New South Wales

Azerbaijan 
“SAVAB DÜNYASI” Thalassaemia Association
Azerbaijan Thalassaemia Society INSAN

 

Malaysia
Federation of Malaysian Thalassaemia Societies
Johor Thalassaemia Society
Pertubuhan Thalassaemia Pulau Pinang
Thalassaemia Association of Malaysia

Maldives
Society for Health Education
Maldivian Thalassaemia Society

Malta
Thalassaemia Awareness Maltese Association (TAMA)

Mauritius
Blood Donors Association (MAURITIUS)
Thalassemia Society of Mauritius

Morocco
Moroccan Association of Thalassaemia
Association Marocaine de Thalassémie et Drépanocytose

 

B N
Bahrain
Bahrain National Hereditary Anemia Society

Bangladesh
Bangladesh Thalassaemia Samity
Bangladesh Thalassaemia Foundation
Lab One Foundation of Thalassaemia
Thalassaemia Welfare Centre-Bangladesh

Belgium
Association Belge de Thalassémie ASBL

Bulgaria
Bulgarian Anti-Thalassaemia Organisation BATA
Thalassaemics’ Organization in Bulgaria (TOB) 

Nepal
Nepal Thalassaemia Society

Netherlands 
OSCAR Nederland

C P
Cambodia
Cambodian Thalassaemia Association

Canada
Thalassaemia Foundation of Canada
The Vancouver Thalassaemia Society of B.C.

China
Childrens Thalassaemia Foundation Ltd
Guangdong Thalassaemia Association
Guangxi Thalassaemia Federation

Cyprus
Pan-Cyprian Antianaemia Association 

Pakistan
Help International Welfare Trust (HIWT)
Pakistan Thalassaemia Welfare Society (Regd)
Thalassaemia Federation of Pakistan
Thalassaemia Society of Pakistan
Abbotonians Medical Association
KASHIF IQBAL Thalassaemia Care Centre (TRUST)
Rifah Welfare Foundation
Thalassaemia Patients & Parents Society of Pakistan

Palestine (Occupied)
Palestine AVENIR Foundation
Thalassemia Patients Friends Society (TPFS Palestine)

Philippines
Balikatang Thalassaemia
Mindanao Thalassaemia Foundation Inc

Portugal
Associação Portuguesa de Pais e Doentes com Hemoglobinopatias 

E R
Egypt 
Egyptian Thalassaemic Friends Association
Romania
Asociatia Persoanelor cu Talasemie Majora
F S
France 
Association francaise de lutte contre les thalassémies (AFLT)
Saudi Arabia
AL-Madina Hereditary Blood Disorder Charity Society
Saudi Friends’ Charity of Thalassaemia & Sickle Cell Anemia Society

Singapore
Thalassaemia Society (SINGAPORE)
Club Rainbow (SINGAPORE)

South Africa
South African Thalassaemia Association

Spain
ALHETA (Asociación española de lucha contra las hemoglobinopatias y talasemias)Sri Lanka
Kurunegala Thalassaemia Association

Sudan
The Sudanese Patients and Parents Society for Sickle Cell, Thalassaemia and Other Related Disorders

Syrian Arab Republic
Thalassemia Patients and Hereditary Blood Diseases

 

G T
Germany 
Thalassämieverein Ulm e.V.
Interessengemeinschaft Sichelzellkrankheit und Thalassämie e.V (IST E.V.)

Greece 
Greek Thalassaemia Federation (EOTHA)
Syllogos Pashonton apo Mesogeiaki Anaimia Nomou Korinthias

Taiwan (China)
Taiwan Thalassaemia Association (TWTA)

Thailand
Thalassaemia Foundation of Thailand

Trinidad & Tobago
The Society for Inherited & Severe Blood Disorders

Tunisia
ALPHATT Tunisie

Turkey
Akdeniz Thalasemi Dernegi
(ATODER) Adana Thalassemia and Sickle Cell Anemia Patients’ Protection And Solidarity Association
TADAD – Thalassemi Dayanışma Derneği
Talasemi Federasyonu (Thalassemia Federation of Turkey)
Thalassemiac and Leukemic Patients
Turkey – Akdeniz Talasemi Dernegi

 

I U
India 
Thalassaemics India
Federation of Indian Thalassaemics
Foundation Against Thalassaemia (Regd.) 
Indian Association of Blood Cancer & Allied Diseases
Malabar T.H.A.S. Society (Kerala)
Mumbai Thalassaemic Society
National Thalassaemia Welfare Society (Regd.)
Nivethan Trust
Parents Association Thalassaemic Unit Trust (Mumbai)
Research Society of BJW Hospital for Children
South East Asia Institute for Thalassaemia India
Thalassaemic Children Welfare Association (Regd.)
Thalassaemia & Sickle Cell Society
The Thalassaemia Society of India

Indonesia 
Yayasan Thalassaemia Indonesia

Iran (Islamic Republic of) 
Charity Foundation For Special Diseases
Iranian Thalassaemia Society
Esfahan Thalassaemia Society

Iraq 
Thalassemia Association in Niniva
DIWANYAH Thalassaemia Association
Iraqi Thalassaemia Association

Ireland

Sickle Cell and Thalassaemia Ireland

Israel 
Israeli Association of Thalassaemia & Sickle Cell Anemia
The Galilee Foundation of Thalassaemia & Sickle Cell Anemia

Italy 
Associazione Ligure Thalassemici Onlus (ALT)
Associazione Talassemici e Drepanocitici Lombardi Onlus (ATDL)
Associazione Veneta per la Lotta alla Talassemia (AVLT)
Fondazione Italiana ”L. GIAMBRONE” per la Guarigione dalla Thalassemia
Associazione lotta allaTalassemia di Ferrara
Associazione Talassemici di Torino Onlus

UAE
Emirates Thalassaemia Society
UAE Genetic Diseases Association

UK
North of England Bone Marrow & Thalassaemia Association (NEBATA)
United Kingdom Thalassaemia Society (UKTS)
OSCAR Sandwell

USA
Cooley’s Anemia Foundation

J V
Jordan
Jordanian Thalassaemia & Hemophilia Society
Vietnam
Vietnamese Thalassaemia Association
K Y
Kuwait
Kuwait Thalassaemia Society
Yemen
Yemen Thalassaemia & Genetic Disorders Society
L  
Lebanon
Chronic Care Center

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